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2 登记资料收集方法
肿瘤登记资料的收集分为被动收集和主动收集两种方法。被动是由各医疗机构定期报送肿瘤登记卡片到肿瘤登记处，或从死因监测部门获取肿瘤患者死亡信息。主动是登记员到各医疗单位、医疗保险机构查阅肿瘤新病例的诊疗病史，摘录肿瘤病历信息，或主动随访获取患者的生存信息。
2.1 建立信息收集渠道
肿瘤登记地区从相关部门收集辖区内肿瘤新发病例、死亡病例、生存信息和相关人口资料。病例资料的收集渠道包括登记地区各级医疗机构、医疗保险数据库、死因监测数据库、新型农村合作医疗数据库等。人口资料的来源包括人口普查资料和公安、统计部门有关资料等。
2.2 开展病例核实工作
肿瘤登记地区负责肿瘤病例的建卡和分类编码，并以身份证号作为标识。通过核对死因监测数据库，对遗漏病例进行补充建卡，对重复病例进行剔除。
2.3 开展随访工作
随访工作的开展采用被动随访和主动随访相结合的方式进行。肿瘤登记处首先将肿瘤发病库与全死因登记库进行被动匹配。未匹配上者通过定期访视、电话、书信、电子邮件等方式，并通过社区居委会、基层医疗卫生机构开展主动随访，获取病例的生存情况（图2-1）。
2 Methods of data collection
Case reporting methods are classified as active or passive.Cancer registries may passively receive the cancer registration cards from health-related institutions or vital statistics bureaus.Meanwhile，Cancer registry personnel may actively retrieve the cancer data from health-related institutions，insurance bureaus and public security bureaus.Cancer registrars may actively follow up the cancer patients for their vital status.
2.1 Data collecting channels
Cancer registries should collect cancer statistics including cancer incidence，cancer death，cancer survival and population data from all kinds of channels.The cancer registries may collect cancer statistics from clinics，hospitals，health insurance databases，death surveillance database，and cooperative health insurance database in rural areas.
2.2 Cancer case certification
The cancer registries are responsible for making cancer case report forms，using identification card number as personal identification code.The cancer death records should also be matched with incidence database.The missing incidence cases should be supplemented，and the duplicated cases should be deleted.
2.3 Follow-up practice
Both passive follow-up and active follow-up are used to collect the survival information of cancer cases.Staff of local registries linked the cancer records and death records based on identifiable information.Patients who were not linked to the death surveillance system are then further followed up through direct contact with them or their family members through home visit，telephone，mails and emails（Figure 2-1）.
图2-1 肿瘤登记工作流程图
Figure 2-1 Flow diagram of the cancer registration system